WEBVTT

NOTE
language:en-US

NOTE Confidence: 0.9396577477455139

00:00:00.240 --> 00:00:03.253
Well, first of all, Melanie, all the people that know

NOTE Confidence: 0.9396577477455139

00:00:03.310 --> 00:00:05.471
you at DaVita tell me I need to get to

NOTE Confidence: 0.9396577477455139

00:00:05.528 --> 00:00:06.039
know you.

NOTE Confidence: 0.9039735794067383

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And so does the village.

NOTE Confidence: 0.9213662147521973

00:00:07.320 --> 00:00:08.720
So my name is Melanie.

NOTE Confidence: 0.972184956073761

00:00:08.960 --> 00:00:10.600
I am 28 years old.

NOTE Confidence: 0.8838542699813843

00:00:10.680 --> 00:00:13.589
I'm from Miami, born and raised, but my family is

NOTE Confidence: 0.8838542699813843

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from Honduras.

NOTE Confidence: 0.8881921172142029

00:00:14.800 --> 00:00:15.680
Congratulations.

NOTE Confidence: 0.7591168880462646

00:00:15.920 --> 00:00:18.320
First generation to be in college, Yeah.

NOTE Confidence: 0.8100173473358154

00:00:18.960 --> 00:00:22.375
So you've got all the normal aspirations and, and, and

NOTE Confidence: 0.8100173473358154

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there's a change There's there's sort of a pivot in

NOTE Confidence: 0.8100173473358154

00:00:25.727 --> 00:00:26.359
your life.

NOTE Confidence: 0.5357357859611511

00:00:26.680 --> 00:00:26.880
Yes.

NOTE Confidence: 0.8706612586975098

00:00:27.160 --> 00:00:27.760
What happened?

NOTE Confidence: 0.9614338874816895

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I was getting ready to almost graduate.

NOTE Confidence: 0.9402045607566833

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I had one year left and all of a sudden

NOTE Confidence: 0.9402045607566833

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my life completely changed.

NOTE Confidence: 0.7268238067626953

00:00:54.040 --> 00:00:56.880
I felt confused, I felt so many emotions.

NOTE Confidence: 0.9300743937492371

00:00:56.880 --> 00:00:57.160
Really.

NOTE Confidence: 0.918218195438385

00:00:57.160 --> 00:00:58.680
I think being first Gen.

NOTE Confidence: 0.8922428488731384

00:00:58.680 --> 00:01:01.350
being a Latina, you know, you hear from a very

NOTE Confidence: 0.8922428488731384

00:01:01.408 --> 00:01:04.195
young age you need to get an education, you need

NOTE Confidence: 0.8922428488731384

00:01:04.253 --> 00:01:05.239
to be successful.

NOTE Confidence: 0.8957301378250122

00:01:05.600 --> 00:01:08.340
The first question I asked was, so can I go

NOTE Confidence: 0.8957301378250122

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back to school?

NOTE Confidence: 0.9677154421806335

00:01:09.920 --> 00:01:12.960
Like I always put school first, right?

NOTE Confidence: 0.9619424343109131

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Like my education, my career first.

NOTE Confidence: 0.8823697566986084

00:01:15.080 --> 00:01:17.066
Little did I know I was supposed to be putting

NOTE Confidence: 0.8823697566986084

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my health first.

NOTE Confidence: 0.9355753064155579

00:01:23.760 --> 00:01:26.280
Then all of a sudden you find out, okay, the

NOTE Confidence: 0.9355753064155579

00:01:26.337 --> 00:01:28.400
progression has continued to evolve.

NOTE Confidence: 0.9650894999504089

00:01:29.040 --> 00:01:31.000
Your kidneys now are in failure.

NOTE Confidence: 0.8276854753494263

00:01:31.160 --> 00:01:32.966
It was the time of my life where I was

NOTE Confidence: 0.8276854753494263

00:01:33.013 --> 00:01:35.343
like, I'm going to move out, I'm going to upstart

NOTE Confidence: 0.8276854753494263

00:01:35.390 --> 00:01:37.719
my career, I'm going to be this independent girl.

NOTE Confidence: 0.9436658024787903

00:01:38.040 --> 00:01:40.712
But also I felt very lonely at the time because

NOTE Confidence: 0.9436658024787903

00:01:40.769 --> 00:01:43.668
not everybody can relate to what it's like having a

NOTE Confidence: 0.9436658024787903

00:01:43.725 --> 00:01:45.999
disease, especially at such a young age.

NOTE Confidence: 0.9262416958808899

00:01:46.000 --> 00:01:47.520
I think I was 24 at the time.

NOTE Confidence: 0.9161890149116516

00:01:47.600 --> 00:01:50.354
I go to the DaVita clinic for the first time

NOTE Confidence: 0.9161890149116516

00:01:50.417 --> 00:01:53.359
and meet my doctor, my nurse, my social worker.

NOTE Confidence: 0.8380891680717468

00:01:53.480 --> 00:01:56.080
So you have a support network within DaVita?

NOTE Confidence: 0.9157610535621643

00:01:56.440 --> 00:01:58.826
I remember my nurses were like, we're going to be

NOTE Confidence: 0.9157610535621643

00:01:58.875 --> 00:02:00.969
here to help you and no matter what you ask

NOTE Confidence: 0.9157610535621643

00:02:01.018 --> 00:02:03.599
me questions, you're going to learn little by little.

NOTE Confidence: 0.9061229228973389

00:02:03.960 --> 00:02:06.080
And my social worker especially I love.

NOTE Confidence: 0.9038372039794922

00:02:06.080 --> 00:02:08.169
Her and when I met Melanie for the first time,

NOTE Confidence: 0.9038372039794922

00:02:08.214 --> 00:02:08.759
she came in.

NOTE Confidence: 0.904547393321991

00:02:08.760 --> 00:02:12.994
She was overwhelmed and so I basically took the time

NOTE Confidence: 0.904547393321991

00:02:13.076 --> 00:02:16.904
with her to try to help her navigate things one

NOTE Confidence: 0.904547393321991

00:02:16.985 --> 00:02:17.799
at a time.

NOTE Confidence: 0.9523104429244995

00:02:17.960 --> 00:02:20.280
We connect on the fact that we both love to

NOTE Confidence: 0.9523104429244995

00:02:20.334 --> 00:02:21.360
get our nails done.

NOTE Confidence: 0.8335291147232056

00:02:22.880 --> 00:02:26.088
Will on support means so much to me because she's

NOTE Confidence: 0.8335291147232056

00:02:26.154 --> 00:02:29.494
more than just a social worker, she's like a friend

NOTE Confidence: 0.8335291147232056

00:02:29.559 --> 00:02:30.279
down to me.

NOTE Confidence: 0.9005211591720581

00:02:30.360 --> 00:02:32.840
I'm sure there's high highs and and low lows.

NOTE Confidence: 0.859390914440155

00:02:32.840 --> 00:02:36.000
Yeah, a big part of this is mental.

NOTE Confidence: 0.8687036037445068

00:02:36.280 --> 00:02:39.204
So it's very normal for people with kidney disease to

NOTE Confidence: 0.8687036037445068

00:02:39.259 --> 00:02:41.080
suffer with mental health issues.

NOTE Confidence: 0.7934039831161499

00:02:41.600 --> 00:02:44.630
There's a stigma in the Latino community that like anxiety,

NOTE Confidence: 0.7934039831161499

00:02:44.682 --> 00:02:46.840
depression, get out of here, go for a run.

NOTE Confidence: 0.8193244934082031

00:02:46.840 --> 00:02:48.240
I went into a deep depression.

NOTE Confidence: 0.7493393421173096

00:02:48.400 --> 00:02:48.680
Actually.

NOTE Confidence: 0.9175602197647095

00:02:48.840 --> 00:02:51.550
I felt like every day was just, I felt numb

NOTE Confidence: 0.9175602197647095

00:02:51.613 --> 00:02:54.702
and I remember that's when I went to social media

NOTE Confidence: 0.9175602197647095

00:02:54.765 --> 00:02:56.720
because it was my lowest point.

NOTE Confidence: 0.83477783203125

00:02:56.880 --> 00:02:57.760
So I cheated.

NOTE Confidence: 0.661531925201416

00:02:58.040 --> 00:02:58.320
Yeah.

NOTE Confidence: 0.9139552712440491

00:02:58.320 --> 00:03:01.600
You're not a little, little social media user.

NOTE Confidence: 0.9692250490188599

00:03:01.760 --> 00:03:03.600
You've got a lot of people following you.

NOTE Confidence: 0.35664376616477966

00:03:03.600 --> 00:03:03.720
Yeah.

NOTE Confidence: 0.6386159658432007

00:03:04.400 --> 00:03:06.320
So tell us how many.

NOTE Confidence: 0.8829379677772522

00:03:06.320 --> 00:03:08.160
And they've got a nickname and everything.

NOTE Confidence: 0.7646762728691101

00:03:08.160 --> 00:03:10.920
Yeah, so they're, they're my warriors, They're kidney warriors.

NOTE Confidence: 0.8140024542808533

00:03:10.960 --> 00:03:16.359
And I have about 2022.4 followers right now and growing

NOTE Confidence: 0.8140024542808533

00:03:16.458 --> 00:03:19.599
thousand yeah, 22,000 followers.

NOTE Confidence: 0.9475853443145752

00:03:19.800 --> 00:03:22.369
I posted a random video and people were like, Oh

NOTE Confidence: 0.9475853443145752

00:03:22.423 --> 00:03:23.280
my gosh, me too.

NOTE Confidence: 0.8886809945106506

00:03:23.280 --> 00:03:25.000
Oh my gosh, yes, my dad gets the same thing.

NOTE Confidence: 0.8215991854667664

00:03:25.000 --> 00:03:26.360
And I was like, what you too?

NOTE Confidence: 0.951447069644928

00:03:26.760 --> 00:03:30.158
And this community started growing and I started getting questions

NOTE Confidence: 0.951447069644928

00:03:30.209 --> 00:03:31.959
and I would make videos answering.

NOTE Confidence: 0.7836772203445435

00:03:32.040 --> 00:03:34.721
It's officially been one year since I became a dialysis

NOTE Confidence: 0.7836772203445435

00:03:34.770 --> 00:03:35.160
patient.

NOTE Confidence: 0.9481725692749023

00:03:35.480 --> 00:03:37.033
So let me tell you a little bit about what

NOTE Confidence: 0.9481725692749023

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I learned.

NOTE Confidence: 0.8118261098861694

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Number one, I'm going to need you to have patience

NOTE Confidence: 0.8118261098861694

00:03:39.928 --> 00:03:42.221
because you're not going to know everything at once when

NOTE Confidence: 0.8118261098861694

00:03:42.262 --> 00:03:43.040
you start dialysis.

NOTE Confidence: 0.9602829217910767

00:03:43.080 --> 00:03:45.000
There are so many things you need to learn.

NOTE Confidence: 0.9497705698013306

00:03:45.080 --> 00:03:46.916
And it was the first time in a long time

NOTE Confidence: 0.9497705698013306

00:03:46.961 --> 00:03:47.880
I didn't feel alone.

NOTE Confidence: 0.9002968668937683

00:03:47.960 --> 00:03:50.457
And in my mind, I'm just like, I'm just posting

NOTE Confidence: 0.9002968668937683

00:03:50.510 --> 00:03:51.519
these silly videos.

NOTE Confidence: 0.9542074799537659

00:03:51.520 --> 00:03:53.427
You know, I don't think it's that big of a

NOTE Confidence: 0.9542074799537659

00:03:53.473 --> 00:03:54.199
deal, but it is.

NOTE Confidence: 0.9409520626068115

00:03:54.280 --> 00:03:57.552
Recently I had a comment of a guy saying, Melanie,

NOTE Confidence: 0.9409520626068115

00:03:57.618 --> 00:04:00.825
I came across your videos and your video saved my

NOTE Confidence: 0.9409520626068115

00:04:00.890 --> 00:04:03.836
life because I wanted to take my own life and

NOTE Confidence: 0.9409520626068115

00:04:03.901 --> 00:04:05.079
that was shocking.

NOTE Confidence: 0.14861510694026947

00:04:05.800 --> 00:04:05.920
Yeah.

NOTE Confidence: 0.7191669940948486

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Have a presentation on social media.

NOTE Confidence: 0.8770719766616821

00:04:23.880 --> 00:04:25.722
Honestly, I want to make a difference in the kidney

NOTE Confidence: 0.8770719766616821

00:04:25.758 --> 00:04:26.120
community.

NOTE Confidence: 0.6924707293510437

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That's that would be my my dream.

